Children's finally called me to say that they would let me make an appointment for my son for next week. All I can say is that it's about time! However, they told me that we still did not have tests done that were requested but they would schedule us anyway. So after hearing that again, I called my doctor's office and read them the riot act for the second time about not giving us the info on the right tests that we needed . I received a call back from my doctor's nurse saying that she had all the emails from Children's and according to them, Children's did have all the test results that they needed and that I should have been able to schedule an appt on July 9th.
I couldn't believe what I was hearing because that is not what I was being told. I finally got a hospital number from her to call-some parent patient advocate line. I did call and told her what was going on about the run around I was getting and the fact that all I wanted to do was schedule an appointment and I could not! She told me that all test results have to be reviewed by the critical nurse dept before it is passed on to what ever dept it needs to go to, in my son's case the GI dept and then it is reviewed again by the GI doctors. What I think happened was the critical nurse dept was telling my doctor's office one story and the GI department was telling the receptionists handling my appointment a different story. That was why there was massive confusion and I was in the middle of it all getting mad at everyone.
Children's has heard my complaints and I am still not finished. I am supposed to contact their hospital relations person to give them feedback about my experience dealing with their hospital and believe me they are going to hear every sordid detail of what I had to go through!