What are the cardinal symptoms of this syndrome?
- Post-prandial diarrhea (varying from simple urgency to incontinence) and fear of eating to avoid diarrhea
- Dysfunctional gallbladder as determined by radiological testing
- Failure to respond to standard therapy of IBS or spastic colon
- Favorable response to bile acid binding agents
It is possible that my son could have this.
The other condition I have found is called collagenous microscopic colitis. Normally when one says colitis, it usually means ulcerative colitis or infectious colitis which often times involves visible inflammation of the colon and bleeding. It still is a possibility that my son has UC although so far all the tests have been negative. The interesting thing about the microscopic colitis which is supposedly rare although they are now thinking that perhaps 10-20% of people with chronic D may have this, is that even with a colonoscopy, the colon will look normal. The intestinal wall has to actually be biopsied for confirmation of inflammation and not only one side but both sides as it could be more prevalent on one side. Also people with this inflammatory bowel disease will have weight loss, severe intolerances to many foods especially dairy and gluten. Although gluten tests will many times come back negative. They have diarrhea several times a day and they cannot tolerate fat. Onset of symptoms can be sudden. One lady that I read about said that she thought it might have been the mercury in her fillings that set it off. She had dental work done and then had symptoms shortly afterwards. When my son had vaccinations, he had severe symptoms within two days. The meningococcal vaccine has thimerosal in it, a mercury derivative and I was highly suspicious at the time that it might have been a trigger to my son's problems. Doctors think that the colitis could be autoimmune in nature. Treatment is usually steroids ie, Entocort, Prednisone which will control the D. Changes to a low-fat, dairy free, gluten free diet can help tremendously. My son's symptoms and onset of his problems fit rather closely to this particular colitis. So Bette Jo, you may be right!
My GI doctors, nurse practitioner never mentioned any of these conditions as a possibility. I am finding that one has to be extremely proactive and become their own detective in order to get any kind of answers. The medical profession is not going to do it, that is for sure!